Patient Resources

In accordance with our mission “to improve the lives of people with peripheral neuropathies throughout the world”, the Peripheral Nerve Society (PNS) is highly committed to organizations who support our patients.  As part of that commitment, we invite Health Groups/Patient Advocacy Groups (PAGS) from around the globe to showcase links to their respective webpages on this page.  Please contact info@PNSociety.com to be added to this listing.

Global/USA Patient Resources:

• Amyloidosis Research Consortium
• Charcot-Marie-Tooth Association (CMTA)
• CMT Research Foundation
• CMT4B3 Research Foundation
• GBS | CIDP Foundation International
• Hereditary Neuropathy Foundation
• The Foundation for Peripheral Neuropathy

Canada Patient Resources:

• GBS | CIDP Foundation of Canada

Europe Patient Resources:

• ACMT-Rete per la Malattia di Charcot-Marie-Tooth
• European Cancer Patient Coalition
• European CMT Federation
• EPODIN / European Patient Organisation for Dysimmune and Inflammatory Neuropathies
• ENMC (European Neuromuscular Centre)

United Kingdom Patient Resources:

• Brain and Spine Foundation
• The Brain Charity
• British Polio Fellowship
• Charcot-Marie-Tooth UK
• Chartered Society of Physiotherapy
• Diabetes UK
• GAIN (Guillain-Barré and Associated Inflammatory Neuropathies)
• Muscular Dystrophy UK
• Motor Neurone Disease Association
• Neurological Alliance
• Pain Concern
• Vasculitis UK