Mission: To improve the life of patients with hereditary neuropathies by advancing care, promoting research and training of clinicians, basic scientists and other health professionals interested in inherited neuropathies. This will be achieved by focusing on three areas; care, research and education.
- To promote standards of care and quality of care internationally.
- To develop guidelines, outcome measures, and clinical trials.
- To work with patients’ organizations to improve care and develop therapies for patients.
- To promote basic science and clinical research towards understanding normal and diseased peripheral nerve function and ultimately aiming at developing therapies for patients.
- To train basic scientists, clinician scientists and clinicians and other health professionals in hereditary neuropathies.
- To provide continuing education for those practicing and to encourage the interaction between basic scientists and clinicians for the benefit of patients.
The CMTR will:
1. Hold an annual special session within the PNS open to all PNS members.
2. Have the option of holding further separate CMTR meetings if necessary.
3. Maintain membership open to all PNS members and anybody else interested in hereditary neuropathies.
The CMTR will have an elected board comprised of a Chair, a Vice-Chair, a Secretary, Immediate Past Chair, and six ordinary members.
- The Chair of the CMTR will have a place on the PNS Board, as an ex-officio (not voting member).
- The Chair and Vice-Chair will be elected for a two-year non-renewable term in the same position. After two years, the Vice-Chair will assume the Chair position without further election. After the end of the term, the Chair will have a position on the Board as the Immediate Past Chair for two years.
- Three new Board Ordinary Members will be elected every two years, for a four-year term.
- Board Ordinary Members are allowed to stand for two consecutive terms, but to stand for further years they need a break of at minimum two years.
- The Secretary is elected for a two year term, which is renewable just once.